Open Journal Systems

Caregivers caring for mentally disordered patients during pandemic and lockdown: A qualitative approach

Ah Yusuf, Roro Dian Tristiana, Ronal Surya Aditya, Fitriana Kurniasari Solikhah, Siti Kotijah, Daifallah M. Al Razeeni, Ebtesam M. Alkhaledi

Article ID: 1752
Vol 9, Issue 1, 2024, Article identifier:

VIEWS - 304 (Abstract) 121 (PDF)

Abstract

Backgound: During a pandemic, it is difficult for caregivers to provide support for mental disorders in the form of care for daily tasks because of the rules for keeping distance and complete PPE (personal protective equipment). This is what makes caregivers experience caring for patients with mental disorders during a pandemic many challenges and new things that must be known. Objective: Caregivers of persons with treating mental illness in Indonesia who were affected by the COVID-19 outbreak and lockdown are the focus of this research. Methods: Twenty-five people participated in using Colaizzi’s method of phenomenology research design. NVivo12 examined data from in-depth interviews and field notes, which were gathered by purposive sampling (QSR International). Results: Stress and work overload, health worsening physical fatigue, family legacy, care for the whole person, as a means of coping, communication has become more difficult. Conclusion: As a result, we discovered something new about the impact of the COVID-19 pandemic on mental health caregivers. Caregivers of people with mental illness face difficulties in caring for patients during a pandemic, so it is important to pay attention to caregivers by making policies related to this.


Keywords

caregivers; COVID-19; qualitative research; mental disorders; rural

Full Text:

PDF



References

1. Cham CQ, Ibrahim N, Siau CS, et al. Caregiver Burden among Caregivers of Patients with Mental Illness: A Systematic Review and Meta-Analysis. Healthcare. 2022, 10(12): 2423. doi: 10.3390/healthcare10122423

2. Chadda R. Caring for the family caregivers of persons with mental illness. Indian Journal of Psychiatry. 2014, 56(3): 221. doi: 10.4103/0019-5545.140616

3. Tolegen M, Utegenova B, Baymuhambetova B, et al. FACTOR ANALYSIS OF SUICIDAL RISK AND PROTECTIVE MECHANISMS OF PEDAGOGICAL STUDENTS IN KAZAKHSTAN. Published online November 17, 2020. doi: 10.31219/osf.io/2jchx

4. Liu Z, Heffernan C, Tan J. Caregiver burden: A concept analysis. International Journal of Nursing Sciences. 2020, 7(4): 438-445. doi: 10.1016/j.ijnss.2020.07.012

5. White CL, Overbaugh KJ, Pickering CEZ, et al. Advancing Care for Family Caregivers of persons with dementia through caregiver and community partnerships. Research Involvement and Engagement. 2018, 4(1). doi: 10.1186/s40900-018-0084-4

6. Sobekwa ZC, Arunachallam S. Experiences of nurses caring for mental health care users in an acute admission unit at a psychiatric hospital in the Western Cape Province. Curationis. 2015, 38(2). doi: 10.4102/curationis.v38i2.1509

7. Fitryasari R, Yusuf A, Nursalam, et al. Family members’ perspective of family Resilience’s risk factors in taking care of schizophrenia patients. International Journal of Nursing Sciences. 2018, 5(3): 255-261. doi: 10.1016/j.ijnss.2018.06.002

8. Budnick A, Hering C, Eggert S, et al. Informal caregivers during the COVID-19 pandemic perceive additional burden: findings from an ad-hoc survey in Germany. BMC Health Services Research. 2021, 21(1). doi: 10.1186/s12913-021-06359-7

9. Wright R, Lowton K, Hansen BR, et al. Older adult and family caregiver preferences for emergency department based-palliative care: An experience-based co-design study. International Journal of Nursing Studies Advances. 2021, 3: 100016. doi: 10.1016/j.ijnsa.2020.100016

10. Vaitheswaran S, Lakshminarayanan M, Ramanujam V, et al. Experiences and Needs of Caregivers of Persons With Dementia in India During the COVID-19 Pandemic—A Qualitative Study. The American Journal of Geriatric Psychiatry. 2020, 28(11): 1185-1194. doi: 10.1016/j.jagp.2020.06.026

11. Mosley PE, Moodie R, Dissanayaka N. Caregiver Burden in Parkinson Disease: A Critical Review of Recent Literature. Journal of Geriatric Psychiatry and Neurology. 2017, 30(5): 235-252. doi: 10.1177/0891988717720302

12. Sherifali D, Ali MU, Ploeg J, et al. Impact of Internet-Based Interventions on Caregiver Mental Health: Systematic Review and Meta-Analysis. Journal of Medical Internet Research. 2018, 20(7): e10668. doi: 10.2196/10668

13. Sheth K, Lorig K, Stewart A, et al. Effects of COVID-19 on Informal Caregivers and the Development and Validation of a Scale in English and Spanish to Measure the Impact of COVID-19 on Caregivers. Journal of Applied Gerontology. 2020, 40(3): 235-243. doi: 10.1177/0733464820971511

14. Gérain P, Zech E. Informal Caregiver Burnout? Development of a Theoretical Framework to Understand the Impact of Caregiving. Frontiers in Psychology. 2019, 10. doi: 10.3389/fpsyg.2019.01748

15. Vaitheswaran S, Lakshminarayanan M, Ramanujam V, et al. Experiences and Needs of Caregivers of Persons With Dementia in India During the COVID-19 Pandemic—A Qualitative Study. The American Journal of Geriatric Psychiatry 2020; 28(11): 1185–1194. doi: 10.1016/j.jagp.2020.06.026

16. Yusuf A, Aditya RS, Yunitasari E, et al. Experience of Persons Affected by Leprosy in Facing Psychosocial Problems : A Qualitative Method. Systematic Reviews in Pharmacy 2020; 11(7): 219–223.

17. Yusuf A, Aditya RS, AlRazeeni DM, et al. Community of inquiry Framework Combined With Podcast Media in Nursing Education innovation During Covid-19 Pandemic: An Evaluative Study. Advances in Medical Education and Practice. 2023, Volume 14: 573-584. doi: 10.2147/amep.s409209

18. Aditya RS, Yusuf A, Razeeni DMA, et al. “We Are at The Forefront of Rural Areas” Emergency Nurse’s Experience During Pandemic: A Qualitative Study. Health Equity. 2021, 5(1): 818-825. doi: 10.1089/heq.2021.0080

19. Nguyen TT, Tran HTT, Cashin J, et al. Implementation of the Code of Marketing of Breast-Milk Substitutes in Vietnam: Marketing Practices by the Industry and Perceptions of Caregivers and Health Workers. Nutrients. 2021, 13(8): 2884. doi: 10.3390/nu13082884

20. Lavis H, van Vliet P, Tavener M. Stroke survivor, caregiver and therapist experiences of home-based stroke rehabilitation: a thematic synthesis of qualitative studies. Physical Therapy Reviews. 2023, 28(2): 157-173. doi: 10.1080/10833196.2023.2180710

21. Archer J, Reiboldt W, Claver M, et al. Caregiving in Quarantine: Evaluating the Impact of the Covid-19 Pandemic on Adult Child Informal Caregivers of a Parent. Gerontology and Geriatric Medicine. 2021, 7: 233372142199015. doi: 10.1177/2333721421990150

22. Soelistyowati E, Yuniarti S, Aditya RS. Family heads’ preparedness facing landslides: simulation game method and focus group discussion. Disaster Advances. 2022, 15(5): 20-25. doi: 10.25303/1505da020025


DOI: https://doi.org/10.54517/esp.v9i1.1752
(304 Abstract Views, 121 PDF Downloads)

Refbacks

  • There are currently no refbacks.


Copyright (c) 2023 Ah Yusuf, Roro Dian Tristiana, Ronal Surya Aditya, Fitriana Kurniasari Solikhah, Siti Kotijah, Daifallah M. Al Razeeni, Ebtesam M. Alkhaledi

License URL: https://creativecommons.org/licenses/by/4.0/